Umbrella Family Support Contact :
Astrid Hunt
Ph : 0416 306 303
E : astrid@theumbrellanetwork.org
Astrid is a young mum of 3 beautiful children and has travelled the scary , emotional road of having a child with epilepsy and a rare chromosone diagnosis.
She co ordinates 'meet and greets' with any families who are wanting to share stories and resources. Astrid is not a trained professional however she can possibly point you in the right direction you need as well as having that knowledge of 'living it'.
Epilepsy Queensland
Gabba Towers , Level 2
411 Vulture St,
Wooloongabba 4102
www.epilepsyqueensland.com.au
Epilepsy Action Australia
GPO Box 9878
In your capital city
E: epilepsy@epilepsy.org.au
F: 1300 88 68 94
PH : 1300 EPILEPSY ( free call)
www.epilepsy.org.au
Rare Chromosone Disorders
Individually most chromosome disorders are rare but collectively they are numerous.
Rare chromosome disorders occur because of extra, missing or rearranged chromosomal material. This means that the genes, the instructions that should make our bodies work and develop properly, don’t function correctly. Some chromosomal disorders are so rare they are actually unique. This can lead to desperate feelings of isolation in affected families.
Support and information is available for people affected by a rare chromosomal disorder.
www.rarechromo.org or contact Astrid Hunt, NQ representative for Unique – Rare Chromosome Disorder Support Group on 0416 306 303 email astrid@theumbrellanetwork.org
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