Umbrella Family Support Contact :

Astrid Hunt
Ph : 0416 306 303
E : astrid@theumbrellanetwork.org

Astrid is a young mum of 3 beautiful children and has travelled the scary , emotional road of having a child with epilepsy and a rare chromosomal disorder.
She co ordinates 'meet and greets' with any families who are wanting to share stories and resources. Astrid is not a trained professional however she can possibly point you in the right direction you need as well as having that knowledge of 'living it'.

Epilepsy affects as many as 2% of Queenslanders. There are more people with epilepsy than with muscular dystrophy, cerebral palsy, Parkinson's disease, motor neurone disease and several others combined. Epilepsy is recognised as the world's most common serious brain disorder (WHO, 1997). While in most cases it is diagnosed during the school years, epilepsy may affect anyone at anytime.

Epilepsy Queensland

Gabba Towers , Level 2
411 Vulture St,
Wooloongabba 4102
www.epilepsyqueensland.com.au

Epilepsy Action Australia

GPO Box 9878
In your capital city
E: epilepsy@epilepsy.org.au
F: 1300 88 68 94
PH : 1300 EPILEPSY ( free call)

www.epilepsy.org.au

Rare Chromosome Disorders

Individually most chromosome disorders are rare but collectively they are numerous.

Rare chromosome disorders occur because of extra, missing or rearranged chromosomal material. This means that the genes, the instructions that should make our bodies work and develop properly, don’t function correctly. Some chromosomal disorders are so rare they are actually unique. This can lead to desperate feelings of isolation in affected families.

Support and information is available for people affected by a rare chromosomal disorder.

Useful websites

www.rarechromo.org

or contact Astrid Hunt, NQ representative for Unique – Rare Chromosome Disorder Support Group on 0416 306 303 email astrid@theumbrellanetwork.org

www.mollysvoice.org MOLLY'S VOICE - Rare Disease ( Cairns )

www.smilefoundation.com.au SMILE FOUNDATION

The Umbrella Network can be contacted by:
Phone 07 4728 3330
Email: info@theumbrellanetwork.org
P.O.Box 432, Thuringowa Central 4817